There's a lot on the internet on this topic already, so if you are really worried about saying the wrong thing you can read more than just this blog post. Some good places to start are here and here. A lot of this comes down to common sense and emotional intelligence. The things that have …
Tag: oligodendroglioma
Getting Better at Celebrating
My husband and I recently had our 9th wedding anniversary. Our wedding was magical. It was beautiful, romantic-- everything went smoothly. Our only regret was that we didn't actually eat dinner that night because we were too busy dancing and laughing the night away. Our photographer was amazing, and I still go to look at …
Chemo Rounds 3 and 4, and another “trip in the tube”
After my terrible second round of chemo (which I wrote about here and here), my third round's dose was reduced by half, and was lower than any of the other doses I have had so far. So--- it felt pretty mild, and my labs didn't budge at all. My doctors were happy that I tolerated …
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My Ode to Physical Therapy
I'm going to start this post by saying I am no graceful ballerina. As a child I toe-walked so much that I was seen by a neurologist. I had zero athletic ability-- in fact, I distinctly remember thinking that I could run faster if I held my arms straight behind me and ran half bent …
*shrug*
Just kidding! I made a shrug! I've explained what a shrug is more times than I expected to over the past week or so-- but I think that is partially my fault. The entire time I was knitting this, I figured it was very possible it would become something other than what I had in …
What am I up to, you ask?
I've had a lot of people ask me what I'm up to, and sometimes this is kind of a hard question to answer. I'm not back to work yet since my chemo has still been so unpredictable. So, when I go to answer this question a lot of the time my natural response-- in the …
Joining Team Consano
Some of you may have seen me announce on social media recently that I have joined the board of a local non-profit organization called Consano. When I first started talking to people about my intention to raise money to fund Oligodendroglioma research, to find new treatments and hopefully a cure-- my colleagues and friends in …
Making it work- going to a concert at the Zoo.
For months I had been looking forward to going to a concert at the Oregon Zoo. The concert series at the Zoo is one of the highlights of summer in the Pacific Northwest. The stage is set up right next to the elephant exhibit, and you are able to sit on lawn chairs and blankets, …
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Learning to go-with-the-flow when plans change
I have a Type A personality. I always have a plan, and a back-up plan. I keep 2 paper calendars up to date -- one has the kids' schedules, and one with our whole family's plan laid out for months at a time. Usually this is full with potential conflicts-- my husband and I may …
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The absurdity of conspiring against the intruders in my head
I used to joke that my surgery was my tumors' "eviction day." I was scheduling their removal, their destruction-- they were NOT welcome to stay one second longer. The planning was constantly on my mind, I was aiming all of my energy towards the ultimate goal of evicting these... tenants from hell. But-- my mind …
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between the busy 