My first MRI was on a Friday, leading to a biopsy the following Monday-- so that weekend was a mess. We had close to no information other than something really scary was happening. When you don't have answers, or any guiding information it is easy to jump to conclusions, worry about worst case scenario-- which …
Category: oligodendroglioma
Hair update
Don't get to used to updates on my hair, because usually I literally spend 10 seconds on it in the mornings. It wasn't until I was in college when I learned how to tame my natural curls, tame the frizz etc etc. I started to color my hair about a year ago, but honestly the …
How to be happy when you have cancer
I'll admit that as a new mother, when people would tell me that "every moment is precious" or something like that, I'd wipe my son's projectile sneeze snot off my arm and try not to roll my eyes too hard. Some moments are just not so awesome-- and when I was tired or frustrated I …
It’s NBD- just a little neglect syndrome, whatevs
One of the possible side effects I was prepared to have after my surgery was to have something called "neglect syndrome," which can manifest as a wide range of symptoms and severity, but the jist is that there is an un-awareness of a side of the body. In the most severe types of this syndrome, …
Continue reading It’s NBD- just a little neglect syndrome, whatevs
1 week and 1 day- from surgery to home.
Well, it took me 1 week and 1 day after my surgery to get back home-- and wow is it nice to be home! I have improved every day, and just being in my own space with my family has been rejuvenating! The day before surgery I had pre-op MRI and lab testing. As part …
Top distractions so far
starting this blog... although I guess I've been writing a lot about this damn cancer, but it sure is taking some time...sending random bitmojis to my friendsWatching schitt's creek (currently somewhere in season 4). I'm making a running list of things I should watch so feel free to tell me your favorites.lunching and brunching with …
The (In)consistency of Time
I think everyone has had the experience of feeling like time is either moving so quickly or so slowly depending on what is going on. In a flash I watched my oldest go from birth to now 7 years old. But one single bedtime with a toddler can last a full eternity.... (he's still awake, …
Brain Tumor Info
Over the past 3 weeks I've learned a lot about brain tumors and brain cancer... more than I ever wanted to know. And, some of the information I probably would rather still not know. But, there is comfort in knowledge, and especially with this: knowing that the science is changing quickly and even in the …
Well… this is happening.
If there was anything I could do to make this NOT happen I certainly would keep some of these details to myself, but since this is probably going to result in my having a dramatic new haircut, its better to share, and avoid some of those awkward double takes. At the beginning of April I …
between the busy 